Saturday, March 22, 2008

The Big D is Back,Living with Depression

Chaos,that is how my brain,my emotions and heart feel.The past few days,all i want to do is sleep.I just spent some time trying to clean up my moms guest room,and of course because of my damn knee,my arthritis I have to take lots of breaks.Than I ask myself,I am doing this because I don't want to hear any shit from mom.She is a neat freak,a cleanliness nut.I am not.Hubby and I tried to talk about money.Dead End.He insists on being 100 percent truthful about his business income tax.We are broke,we just barely have enough money,and he wants to just give it away.
My house is falling apart.I don't want luxury ,I just want basic maintenance.I feel like screaming!

I will try and write more later,my brain hurts right now....

Thursday, March 20, 2008

Starting a New Blog

Hello everyone.I finally can think,and have gotten over mostly the exhaustion from the U.Penn Journey.The Good News is,Paul does not have frontotemporal dementia.The bad news is,he does have brain shrinkage,and some deficits,and it could turn into dementia down the road.Now we both have to work on rebuilding this shattered marriage.The Good News,We both seem to want the same thing for our marriage.The Bad....i feel like a shell of a woman,a person.I feel like I am drifting ,lost ,very lost at sea.
So,either I will figure out how to change the title of this blog,or create a totally new one.....I will keep you posted.
I missed writing on this blog,and I missed all of you,my soul sisters across the web...Peace

Tuesday, March 11, 2008

High Anxiety!

I have been running around all morning,getting ready for the big trip tomorrow.Lots of dog stuff to bring in the car to the kennel,getting 2 big dogs in the car,the 2- minute car trip,getting them out of the car,into the kennel.Did I tell you already I hate leaving the dogs at the kennel??!!!
I have learned,through this Dementia thing,that my patience level is low.I have been under so much stress for such a long time,I can't tolerate much stress anymore.I need lots of patience with hubby now.I wonder how I make it through each day.When people say,One day at a time,how about one minute at a time??
I hate long car rides,but I have to go .Husband stresses me out just being at home now,I have to have the long car ride with someone who is impaired.Oh well,I am glad the Dr. is going to see him,and it will be over with before I know it.Peace....

Monday, March 10, 2008

Countdown to Wednesday

This may be the last blog until next week.I was originally going to take hubby to Hershey U.Penn ,than he got mad and told me he didn't want me to go.Dr,emailed me this am,and said I have to go.I knew that it was crucial for me to be there,since hubby does not think there is anything wrong with him.Anyway,so glad I got the dogs their kennel cough spray and their rabies shots.Now I have them ready to go.Called the kennel back,the lady must think I am nuts!So will be dropping 2 dogs off there tomorrow afternoon.We leave Wed am at 6.Paul's first appt is Thursday 10:30 am.According to a lady from my support board,Paul will be testing most of 2 days.So I think,we will be heading back down here on Saturday,but am not sure.
Anyway....I have to leave my comfort zone once again,which hasn't been too much of a comfort zone anyway,with the way hubby is acting.
I hate leaving my dogs at the kennel,but this appt is so crucial it is not funny.I know they will survive,but they are older,and I still hate it.

Anyway,if I don't post tomorrow,I will surely post when I get back and update you on the latest in the diagnosis of Paul.Peace

Saturday, March 8, 2008

Lazy Days and Wind!

It is 8:48 EST,I basically laid around all day,in between chores of course.Hubby was home most of the day,and didn't talk much,and was blank,but at least he wasn;'t mean.It is so weird to have your husband here,but not really"here"It is lonely,but I best get used to it,it isn't going to get any better,it will get worse.
I am happy Paul decided he didn't want me to go to U.Penn with him.I can't take any more stress right now.My knee and legs have had it from overdoing it since my surgery in December.

Youngest son moved out this weekend.Of course he still has a crap load of stuff here.I am happy though,he has his own place,but it is just down the road.
Youngest son can drive me crazy,but I love him,he will always be my baby.My oldest son comes home to SC tomorrow to see his wife and daughter,after being at my ex husband's funeral.This whole week felt surreal.Actually my whole life has felt surreal.
Hubby also has been sleeping most of the day,actually 99 percent of the day.That is what he does mostly now when he is home.Sleeps,eats snacks,sleeps some more,drives me nuts,sleeps...you get the pictures.
I just finished 2 Vampire books,by a new author I discovered.I have the 3rd one here,but I started reading something spiritual,mind you,not religious,spiritual.So far I read 5 chapters.
I have been playing a lot of handheld yahtzee to keep me from going insane.
LOL It is 36 degrees here,and I have my desk fan on from hot flashes!I know there are lots of other women out there with the same problem.
I have been trying to eat better again,which I managed to do for a year and a half,and than I went crazy when all the crap with hubby went down.I am not being crazy,but trying to make better choices.I have no desire to starve myself.
All my days,seem to run into each other,since I no longer have a spouse.Well you know what I mean,his brain is gone.
Whether I want it or not,my life has changed forever,and I best deal with it.Peace

Friday, March 7, 2008

The Waiting Game

High anxiety.That is how I feel these days.U.Penn called today,and got Paul preregistered.I am glad,on the other hand,scared.If this new Doc doesn't find anything,then I am living with a psychopath and I have to make plans.Plans for my future that don't include him.
I have been really hurting about my middle 2 sons.I have though back over the years.There were many times where things happened between me and Paul ,and Paul told the boys bad things about me,they had no business knowing.So I am very angry at Paul right now.Of course ,that is not the only reason.
It is a huge reason though.I have put up with so much crap from him for 23 years,they act like he was a saint.I taught him how to be a better parent.When I met him,and say how he treated his 2 kids from his first marriage,I was scared.I was also trapped.Ex left me,no money,no place to go.So,I walk right into another fire.Maybe I am so damaged from my baggage,and I wanted everything to be good.I prayed it would be good,I tried to make it good.I can't make a relationship by myself.It takes two.
Even though I know,besides my faults,I was a damn good wife to him,and mother to my sons,it hurts me to my soul to be treated like a stranger to my husband,and by my 2 middle sons.
I just can't let it go.I try,but I can't.
Even though Paul is alive in some ways,the Paul I fell in love with is gone.The person who replaced him is horrible.Evil,nasty,viscious and cruel and very spiteful.
If it wasn't for my cats and dogs,I would have been gone already.This is killing me,my spirit,heart and soul.I can't take it much longer.I want peace ,peace ,peace.I don't think I will ever have it.
BTW...I was supposed to go to Hershey U.Penn with him,but he doesn't want me to go,and frankly between my knee surgery,the grandaughters birth,the day to day living with Satan.I have nothing left.I am utterly exhausted.This is the end of the road.If this Doc finds nothing wrong,husband said he will go to no more Doctors.

Thursday, March 6, 2008

One more thing to add

I forgot to mention,Satan aka Paul told my sons terrible things about me at various times when they were growing up.Things that should have been between me and him.So I partially blame him for the estrangement of my 3 sons.I hate you ,son of a bitch!

When Love Dies,And My Marriage is Over

I feel dead inside.I have reached the point of no return with my "marriage"it is not really a marriage ,it is in legal terms only.My marriage ended a long time ago.Just took me so friggin long to see.
Two nights ago,Satan aka hubby said the most cruel and hurtful things to me.I will never forget them,as they stabbed me in my already bleeding heart.He told me he is the way he is because he had to deal with my depression all these years.That I am the reason he is stressed and miserable.
He may as well have taken a dagger to my heart.I sat there sobbing,and of course because something is really wrong with his brain,no emotion,no reaction.
Pitiful,my life is pitiful.
Even though Paul has gotten much much worse,I have been flashing back to the very beginning of our marriage.It made Paul feel powerful and in control,because I was so needy and desperate.As long as I was dealing with my baggage,he felt like a man.He certainly came into the relationship with his own fucking baggage.He was a crack addict when I met him,and I didn't know.My ex husband had a coke problem,and I don't mean Coca-Cola either.However with Paul,instead of acting like speed with him,it mellowed him out.I went through hell in those years.
He has never been an easy person to live with.Whenever we have had problems,arguments,he has always blamed me for everything,my family blamed me for everything,when I was growing up,and my 2 middle sons and my youngest blame me as well.
Folks I am fed up,I have absolutely had it .No one else is going to shit on me,and me just take it.
I am taking my life back.I may be poor,may be penniless,but at least i will have my dignity!

I have also decided the 2 of the "friends" in my life are going to be no longer.They bring me down,make me feel worse about myself.Good Bye,you are dragging me down,and you no longer have a place in my life.I would rather be alone,than feel like shit whenever I talk to you or see you.
I am going to start going to plays,concerts,lectures,etc...I am going to create my own life,on my terms.If anyone doesn't like it,I don't care.
It is long overdue.
From my biological father,to my ex husband,to other men,and therapists and Doctors.YOu have shit on this chick for the last time.
We women are raised that it is not lady like to get angry,.Bull CRAP!We are entitled to our emotions the same as you shit head men,whoever you may be.
I am going to treat myself to the movies,breakfast,lunch,whatever.I don't need a man to complete my life.I have put off my needs,wants and desires for everyone else.It is my turn baby,at 46 I am going to take care of me,think of what I want and need for my well being.
This is my Declaration of Independence World!Do not Fuck with me,ya hear???I am no doormat,I am no idiot.Just because I have depression ,and I am not perfect,gives no one the right to shit on me.
I am going to live today!Peace....

Tuesday, March 4, 2008

Early Morning Shock

I got a phone call 6:30 this am from my oldest son.My ex husband,his father died at 48 years old,while undergoing a routine hernia operation.There was no love lost between me and his father.However,I do feel sadness for my 3 oldest sons.The weren't super close to their dad,but in his own warped way,I am sure he loved them.
My oldest son was so torn up,because finally he gets to bring his baby girl home from the hospital today,and now he has to go to a funeral.

It is amazing how life's big twists can bring you back to an earlier time.I remember being crazy madly in love with this man,than after he left me with 3 toddlers and no money,such hatred.
Over the years,I wouldn't say I hated him,but I couldn't stand to be in his company either.Had to go through 3 weddings,with him there.He was pleasant,but I hated seeing him.
It amazes me,that now they lost their biological father,and their Step dad,Paulie is gone to them also because of the dementia.Of course it will kill him eventually.I think I am still in shock from this am's phone call.I just got back from the vet(big ordeal)2 big dogs.Now they will be able to go to the kennel,while I take hubby to UPenn.
I was very very sad when I went to bed.I can't believe how uncomfortable I feel in my own home when Paul is home.There is so much silence now.It is like having someone already dead but their body still there.Very weird feeling.I do feel bad for my exes wife too.It was his third marriage,and they have only been married 2 years.Well I think that is all for right now.Peace

Monday, March 3, 2008

My life in the madhouse

The past week or so,Paul aka Satan,has been making all kinds of weird noises and vocalizations.Tonight he was mostly silent upon coming home from work,than he started singing nonsense in a falsetto voice.It is driving me mad!

Lately he mimics the birds outside,the cats,the tv,the appliances.He talks to himself all the time,and no I am not talking about what we all do ladies .I mean he really talks to himself.This is the most bizarre disease I have ever seen.I can't wait until he is mute.I know sounds terrible,but on my blog I aim to keep it real.So being real,I do not want any of this,I do not feel anything towards hubby anymore.Living like this 4-5 years is damaging,it has damaged my heart,my soul,and a lot of my love.

Whoever is out there and is living with a spouse with frontotemporal dementia,or some other kind,you know what I mean?
I am awaiting the Dr. in Hershey,I had Paul's records faxed today.I need to know asap,so I can get a cheap hotel room,while we are there.I want closure,I want a Dr. to listen to me,and do the right tests.This is the end of the Medical road for us,Paul said,if this guy says nothing is wrong,that is that.
So a lot is hinging on this diagnostic testing.Of course my sanity for one thing.I feel as if I have been holding on by a mere thread.
It is so weird to have this man ,who is legally my husband,not share anything anymore.We always talked about the kids,now he never mentions our 4 sons.He used to call me every morning,just to hear my voice,now he rarely calls,and if he does,he is pretty unintelligable on the phone,sometimes he j ust stops talking and there is silence.
My heart hurts because of Donovan.My precious Donovan,who I will never know.My family is my life,has been my life,and 2 have 2 sons so cold,I can't understand it.It is not like they ever said,Hey mom I am pissed off at you because of.........They haven't told me anything.I can handle the truth,I can't handle cruelty,especially at the hands of my 2 middle sons.
I am in isolation mode this week,it is my way of protecting myself from all the Shitheads out there,and boy there are plenty.So many hurtful things said to me over the past few years,few months,few weeks.So I go inside my own little cocoon,and stay by myself .I need to shut the crazy world out for a few days.
It is nighttime,which means lonliness.At least it was a lovely day,and I got to sit on the porch a lot with the dogs.Nice breeze,quiet.
Youngest son moves out this weekend.He is back to denial about his dad.So that means I am the baddie all over again.
Time for a cigarette...Peace

Saturday, March 1, 2008

So blue,So lonely,So down

Weekends used to be so nice,that was before Dementia took over my hubbies brain.Now they are pure Hell.I hate them.My physical health is for sure being effected by his illness,and all the shit I have to put up with.While I am happy to take him to the Dr.in Hershey,Car rides are pure hell with this man.It will be just tons more stress,but I have to do it.

I have been so stressed out lately,my hot flashes have come back with a vengeance.I am already hot natured,so I feel like a human bbq pit.I am at my pc with a fan blowing on my face,and it is only 52 degrees out.

I am really bummed about my 2 middle sons,how they don't seem to care,it really gets to me,I try not to let it,but I can't help it.
My hound dog Gracie who is almost 9 and a half is showing signs of old age,I am noticing little things that are going wrong.My cat Spanky is the oldest cat right now,and ever since Cato died a few months back,he is not the same.He lost weight,he has a cold,he is lethargic.He can't jump as well.I know it broke his heart when Cato went.They were like Salt and Pepper.Destiny my calico who is around 8 has some kind of weird skin thing going on.I take her and Spanky to the vet this week.
I am happy to say my turtle is doing great.She got real sick several months back,and I really though I was going to lose her.I even bought turtle vites off the net,and a new heat lamp.She is doing amazing.I am so happy.
Well my left knee is doing much better,but I notice the past few days,my right knee acting up.I know there is a direct link to depression and body aches.I do have arthritis and fibro,so who knows what is making it hurt.
I woke up from my nap today with a panic attack.I hate when that happens.I feel like a am standing on a deserted island all by myself,with no boat in sight.Peace

The Black Dog Returns,I am depressed

I wanted to post last night,just didn't have it in me.I felt really bad yesterday,physically and emotionally.The night before last I tripped and fell,and really hurt myself.I didn't break anything,but I fell on the surgery knee,and my hands with the arthritis are killing me.Nothing new in the Dementia front,except I just can't stand living with my husband this way.It is like being with a 53 year old toddler.
I woke up this am,to a mess in the kitchen,made my husband because he was up all night.The garbage was overflowing,garbage all over.I have enough jobs in the am to do with the cats and dogs and turtle.
Got a call from one of my middle sons,who has kept me away from grandson.I was so sad when I got off the phone.Number one,I could tell by his tone,that he doesn't believe me about his step dad.He wasn't mean,but he wasn't warm either.I raised my sons with lots of love and affection.I can't stand being around cold,robotic people.I can't believe that 2 of my sons are so cold.
Satan just left for mens prayer,what a joke,he is so mean,nasty,cruel,he is everything opposite of how Jesus is.I know it is the Dementia,but at this point,I don't care.
I am so lonely,I am tired of people not believing me about hubbies Dementia.
I have a super busy week coming up,I need to get the 2 dogs Kennel Cough for boarding them when I go to Hershey-UPenn with hubby the week of March 10th.I have 2 sick cats,who I am bringing to the vet this week.I have to contact Duke in NC to get hubbies records faxed to Dr.E in PA.I have to talk with my best bud about cat and turtle care while I am gone.
I have to pay bills,make phone calls,go grocery shopping(yuck),get my rx's refilled,and on and on.
My kitchen floor looks like a mudroom,and I just don't have it in me to mop it.I hate when I feel like this.
Sunday March 9th I get a measly hour or so with my 2 year old grandson.I have to drive 30 minutes to see him,because they won't bring him to our home.I will do it to be with Donovan,but his parents make me angry.
Than the week after we go to PA,I am leaving for a week in SC to spend some good time with new grandaughter Katrina Grace and my son Tom and his super wife Kristin.I am not a big fan of driving long distances,but you do what you gotta do.
My youngest son has been a real snot lately.Last night he upset me,he moves out next weekend,Hooray!He has so much crap in his room upstairs,I can't wait for the room to be empty,so I can someday transform it into a nice sitting room/aka guest room.
I am disgusted with myself and my eating habits.I know how to eat right,I know all about healthy foods,however when I am depressed or sad,I just don't eat right.All my clothing is tight again,it was so nice before all this for the first time in years,to have my clothing baggy.
I don't know what to say to people anymore.When I feel like this I isolate myself.So many people don't know what to say to me,or they say something cruel,or well meaning but stupid,which makes me feel worse.
I have so much to do today,but i don't feel like doing anything but showering and reading.
I check in on my online support group for FTD daily,many times daily.It is my one sanity in my insane world with hubby.Those people truly are the only ones that understand my plight.
I feel bad that we all have to go through this.Peace